Prism: Shedding Light on Life with Duchenne

Prism: Shedding Light on Life with Duchenne

  • Downloads:1851
  • Type:Epub+TxT+PDF+Mobi
  • Create Date:2021-08-05 15:21:00
  • Update Date:2025-09-06
  • Status:finish
  • Author:David K.
  • ISBN:1736646303
  • Environment:PC/Android/iPhone/iPad/Kindle

Summary

In this refreshingly relatable memoir, David K。 humanizes the experience of life with Duchenne muscular dystrophy。 His many poignant recollections act as a prism, making the invisible visible, and demystifying the reality of having this neuromuscular disease。 Among his many experiences:

• Being a “normal” college student: living away from home, staying in a dorm, learning independence, partying

• Confronting his early mortality at the age of 13, and being entirely unprepared to deal with it

• Kissing a girl for the first time at age 19, and realizing that women could indeed be interested in someone with a severe disability

• Learning he needed a ventilator the hard way: nearly suffocating when out with friends, and rushing home in a panic

David does not sugarcoat anything, nor does he spout a lot of empty inspirational rhetoric。 All he does is peel back the curtain and show what it’s really like to live with a disability。

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Reviews

Peter

David K。’s 2021 memoir, Prism: Shedding Light On Life With Duchenne is an excellent memoir about his life with Duchenne muscular dystrophy (DMS)。 One of the main parts of the book is about David K。’s life at the Roberts program at a Midwestern University。 I did not know that much about DSM。 I have been through a program like the Roberts program that teaches people how to train personal assistants (PAs) to work for them (66)。 My style with Personal Assistants was different from David K。's style b David K。’s 2021 memoir, Prism: Shedding Light On Life With Duchenne is an excellent memoir about his life with Duchenne muscular dystrophy (DMS)。 One of the main parts of the book is about David K。’s life at the Roberts program at a Midwestern University。 I did not know that much about DSM。 I have been through a program like the Roberts program that teaches people how to train personal assistants (PAs) to work for them (66)。 My style with Personal Assistants was different from David K。's style but he lays out very well the learning curve most college students with disabilities go through when they start to work with PAs。 The name of the book comes from the fact that prisms refract light into different wavelengths。 David K。 uses the prism as a metaphor to illustrate the way that he views DSM。 Usually, people only see one wavelength of light, but when lights pass through a prism people see many different wavelengths。 David K。 feels like people only see one part of being physically disabled, but there are so many different parts to being physically disabled (i-ii)。 I liked the book that was dedicated to Philip Edgerley。 I did not know him as well as David K and his friends, but this memoir seems like an excellent tribute to Edgerley。 David K。’s memoir is a readable and entertaining account of his life with DMS。 。。。more